Autism-Europe annonce avoir sign\u00e9 la d\u00e9claration europ\u00e9enne conjointe \u00ab Care doesn\u2019t follow a schedule. Flexibility matters \u00bb, lanc\u00e9e par Eurocarers, afin de soutenir un appel \u00e0 des environnements de travail et des politiques publiques permettant de concilier travail, responsabilit\u00e9s de proche aidant et vie quotidienne. L\u2019organisation souligne que, partout en Europe, les familles soutenant des enfants et des adultes autistes rencontrent des difficult\u00e9s importantes, avec une charge de soin qui p\u00e8se de mani\u00e8re disproportionn\u00e9e, et souvent invisible, sur les m\u00e8res et autres aidants informels.<\/p>\n
Le texte insiste sur le fait que les besoins de soins sont fluctuants et difficiles \u00e0 planifier (changements de rendez-vous, d\u00e9faillance d\u2019une solution de prise en charge, d\u00e9gradation soudaine de l\u2019\u00e9tat de sant\u00e9, urgences), alors que l\u2019organisation du travail reste majoritairement fond\u00e9e sur des horaires fixes et une planification anticip\u00e9e des contraintes familiales. En l\u2019absence de flexibilit\u00e9, de nombreux aidants informels seraient contraints de r\u00e9duire leur temps de travail, de refuser des opportunit\u00e9s de carri\u00e8re, de prendre des cong\u00e9s non r\u00e9mun\u00e9r\u00e9s ou de quitter l\u2019emploi, avec des effets n\u00e9gatifs cumul\u00e9s sur les revenus, la protection sociale, les droits \u00e0 pension, ainsi que sur le risque de pauvret\u00e9, d\u2019exclusion sociale et sur la sant\u00e9 et le bien-\u00eatre.<\/p>\n
La d\u00e9claration rappelle que la flexibilit\u00e9 au travail et des cong\u00e9s de proche aidant adapt\u00e9s sont essentiels, mais ne suffisent pas \u00e0 r\u00e9pondre \u00e0 des besoins plus larges. Elle met en avant la n\u00e9cessit\u00e9 de services de soutien complets et accessibles au niveau local, de solutions de r\u00e9pit, d\u2019une protection contre l\u2019ins\u00e9curit\u00e9 \u00e9conomique et de politiques fond\u00e9es sur les droits, con\u00e7ues \u00e0 partir de la r\u00e9alit\u00e9 v\u00e9cue par les aidants informels. Autism-Europe indique que ces pr\u00e9occupations ont structur\u00e9 sa contribution 2025 au syst\u00e8me des Nations unies sur la prise en charge familiale des enfants en situation de handicap et appelle les d\u00e9cideurs europ\u00e9ens et nationaux \u00e0 agir en cons\u00e9quence.<\/p>\n
Sur le plan r\u00e9glementaire europ\u00e9en, la d\u00e9claration se r\u00e9f\u00e8re \u00e0 la directive sur l\u2019\u00e9quilibre entre vie professionnelle et vie priv\u00e9e, qui a instaur\u00e9 des droits pour les travailleurs ayant des responsabilit\u00e9s de soin, notamment un minimum de cinq jours ouvrables de cong\u00e9 de proche aidant non r\u00e9mun\u00e9r\u00e9 et un droit de demander des modalit\u00e9s de travail flexibles. Tout en reconnaissant ces dispositions comme une avanc\u00e9e, les signataires estiment que cinq jours de cong\u00e9 et un droit \u00e0 la seule demande de flexibilit\u00e9 ne refl\u00e8tent pas la r\u00e9alit\u00e9 de besoins de soins intensifs, continus ou variables, et ne constituent pas \u00e0 eux seuls un v\u00e9ritable \u00ab plan de prise en charge \u00bb pour les aidants. L\u2019ensemble du texte vise \u00e0 sensibiliser les institutions europ\u00e9ennes et les \u00c9tats membres \u00e0 l\u2019insuffisance des dispositifs actuels pour les aidants non professionnels, en particulier ceux accompagnant des personnes autistes. (contenu r\u00e9sum\u00e9 en fran\u00e7ais par l’IA)\u00a0\u200bLire la Suite<\/a><\/p>","protected":false},"excerpt":{"rendered":" Autism-Europe annonce avoir sign\u00e9 la d\u00e9claration europ\u00e9enne conjointe \u00ab Care doesn\u2019t follow a schedule. Flexibility matters \u00bb, lanc\u00e9e par Eurocarers, afin de soutenir un appel \u00e0 des environnements de travail […]<\/p>\n","protected":false},"author":1,"featured_media":11393,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[19],"tags":[246,227,226],"class_list":["post-19997","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-troubles-du-neurodeveloppement-et-autisme","tag-autismeurope-org","tag-ia","tag-sources-etrangeres"],"_links":{"self":[{"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/posts\/19997","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19997"}],"version-history":[{"count":0,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/posts\/19997\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=\/wp\/v2\/media\/11393"}],"wp:attachment":[{"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19997"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=19997"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/veilles-affaires-sociales.fr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=19997"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}